ይህ ድር ጣቢያ ኩኪዎችን ይጠቀማል በዚህም እጅግ የላቀ ተጠቃሚ ተሞክሮ ልንሰጥዎት እንችላለን. የኩኪ መረጃ በአሳሽዎ ውስጥ ይቀመጣል እና ወደ ድር ጣቢያችን ሲመለሱ እርስዎን መለየት እና ቡድናችን የትኛው የትኛው ክፍል በጣም ጠቃሚ እና ጠቃሚ ሆኖ እንደሚያገኙ እንዲረዱ ያግዛቸዋል.
የኢቢ ጥናት እንዴት እንደሚሰራ
Scientific research, including the epidermolysis bullosa (EB) research process, uses scientific processes to provide objective information and knowledge.
It is critical to enable us to find out what actually causes a symptom and what can really make a difference to it.
This short video explains more about how research works:
Scientific research begins with an observation: seeing something happen. If a baby is born with blistered skin, this symptom is an observation. Some researchers will study how often it happens, when, where, and how. The observation leads researchers to consider what causes the symptom and how it can be treated.
Doctors don’t need to know exactly what causes a symptom before they try to treat it, but knowing more can help researchers choose which existing treatments might work best and which could make things worse.
It’s important to know how well different potential treatments work. This is when ክሊኒካዊ ሙከራዎች ይህንን ለማወቅ በተመራማሪዎች ይከናወናሉ.
ተመራማሪዎች አዲስ ነገር ሲያገኙ, አንድ ይጽፋሉ በሳይንሳዊ መጽሔት ውስጥ የሚታተም ጽሑፍ, so the knowledge becomes available to everyone. They don’t just say what they think they’ve found out but explain clearly what they did, what the results were, and how they were analysed. This also allows other researchers to draw their own conclusions and carry out further research to build on the new information.
Many research studies will have flaws, and some will provide stronger evidence than others, so it’s important that everyone can read exactly what was done. Evidence from research studies is used to inform decisions about whether a treatment should be licensed and provided by the NHS. Sometimes a research study provides evidence that an original idea was incorrect. Studies that show something is not the case or that a treatment does not work effectively are also vital for people to receive the best care.
DEBRA UK is the largest UK funder of EB research. We fund various medical research for clinical trials on treatments being developed, to repurpose existing treatments and basic science. ስለዚህ የበለጠ ማወቅ ይችላሉ all the research projects we’re currently funding here.