ይህ ድር ጣቢያ ኩኪዎችን ይጠቀማል በዚህም እጅግ የላቀ ተጠቃሚ ተሞክሮ ልንሰጥዎት እንችላለን. የኩኪ መረጃ በአሳሽዎ ውስጥ ይቀመጣል እና ወደ ድር ጣቢያችን ሲመለሱ እርስዎን መለየት እና ቡድናችን የትኛው የትኛው ክፍል በጣም ጠቃሚ እና ጠቃሚ ሆኖ እንደሚያገኙ እንዲረዱ ያግዛቸዋል.
የDEBRA አባል ይሁኑ
We are the patient support organisation for people living with any form of inherited or acquired EB in the UK.
We are committed to supporting people living with or directly affected by EB and offer a range of services and EB community support to enhance quality of life, whether you are a DEBRA UK member or not. However, by joining us as a member you will have access to an EB support network where you get information and support over the phone, virtually, and in-person, and access other great benefits including bespoke DEBRA UK events, where you can connect with other members of the EB community, discounted holiday breaks, advocacy, and expert financial information, support, and grants.
“DEBRA ለኛ ትልቅ ትርጉም አለው። በብዙ መንገዶች ረድተውናል። በማንኛውም ጊዜ ችግር ባጋጠመኝ ጊዜ፣ የእኛ የማህበረሰብ ድጋፍ አስተዳዳሪ የባለሙያ ምክር፣ ስሜታዊ ድጋፍ እና ጠቃሚ ተግባራዊ እና የገንዘብ መረጃን በሌላ መንገድ ማግኘት የማንችለውን ይሰጣል።
የDEBRA አባል
Membership also gives you a voice and the opportunity to shape what the charity does; the research projects we invest in, and the services we offer for the whole EB community.
As well as being there for you, we need your support. By becoming a member you will be making a difference because the more members we have, the more data we have, which is crucial to support our EB research programme, and with more members we have a louder collective voice to help lobby the government, the NHS, and other organisations for the support we need to improve services for the benefit of the entire EB community.
So there really አይደለም any reason not to become a member. It አይደለም cost you anything and you can apply to join in minutes.
You may never need us, but we are here for you when you do, and by becoming a member you can help ensure that other people living with, or directly affected by ማንኛውም ዓይነት EB, get the support they need.